I call it our story because Ron is unable to. Thankfully it is a long one so i will provide some highlights. 20 years ago Ron started complaining of dizziness and was walking into things. I assumed he was having problems with his ears. We had gone SCUBA diving and thought he had damaged his ear dr...um equalizing. He went to see an (ENT) Ear Nost and Throat doctor. As a nurse I typically skip the family practicioner and send him to the specialist. The ENT sent him for an MRI to rule out an acoutic neuroma. Not a great diagnosis but it soon got worse. The neurologist on call at the hospital got Ron's films and immediately called us. I knew it was not good news when a doc you don't know calls you and says to make an appt as soon as possible.
We arrived at her office and I immediately knew when I saw the films that that thing in his brain did not belong there. That was the beginning of our brain tumor journey. An astrocytoma grII-III. 20 years later, radiation, 7 surgeries, more MRI's than I can begin to remember, loss of function in his right side, aphasia, visual changes, seizures, therapy, blood tests, falls and tiredness to make any one give up hope. Not us. He is LIVING with this and each year that we hear all is stable we are reminded how fortunate we are. He is the billboard of courage. It has been difficult watching him slowly loose function in his right side. But he has taught himself how to do everything with the left and continue to walk despite the weakness. The worst part of this is his aphasia. I would love for him to be able to read, share his own story, tell me how he is feeling, tell me what he needs. We have adapted to that loss too.
I would not have learned so much about life and living, hope and love without him. My passion is to share our story and to reach out to others to offer hope and love. We have published a memoir, Hope through the Eyes of Love. I would love to share it with each of you. So glad to be a part of this group and look forward to sharing your journey with you.
Book Summary ** Our lives, after the diagnosis and subsequent treatment, of my husband for a brain tumor, clearly have taken a path less traveled. Yet our journey has and continues to be, a journey of hope, joy and of unyeilding commitment. We invite you into our lives, a view of our childhood, marriage, a marriage seperate from convention, yet strongly bound. Join us as we recall the last twenty-five years, twenty of which have been spent LIVING with a brain tumor. Come, witness our challenges and discover our triumphs as we reinvent our relationship, struggle to redefine marriage roles, communication styles, and reclaim intimacy after illness.